My Journey with hEDS

As someone living with hypermobile Ehlers-Danlos syndrome and mast cell activation syndrome, I bring both clinical expertise and personal insight to my care.

Bridging Science & Experience

Integrating evidence-based medicine with lived experience shapes my approach.

Whole-Person Focus

More info coming soon... I am still working on this page ;-)

Earlier Diagnosis

Shortening the journey from first symptoms to clinical clarity.

Professional Consultation

Building informed pathways for complex health challenges. We are more than our diagnoses; we are people seeking a sustainable way to live well.

Increasing Awareness

Partnering with colleagues and stakeholders to recognize the multisystemic nature of connective tissue disorders.

I am dedicated to:

Hypermobile Ehlers Danlos Syndrom (hEDS)

This page is still under construction. Watch this space for more information and support coming soon.

What is hEDS exactly?

Here you can read more about hEDS. For my personal experience and tips, scroll below.

More info here

Diagnostic criteria

I find the current diagnostic criteria limited and feel they don't take into account the multisystemic aspects of hEDS. You can use it as a starting point to see for yourself if you meet the criteria.

Assess here