My Journey with hEDS

As someone living with hypermobile Ehlers-Danlos syndrome and mast cell activation syndrome, I bring both clinical expertise and personal insight to my care.

Bridging Science & Experience

Integrating evidence-based medicine with lived experience shapes my approach.

Whole-Person Focus

More info coming soon... I am still working on this page ;-)

Earlier Diagnosis

Shortening the journey from first symptoms to clinical clarity.

Professional Consultation

Building informed pathways for complex health challenges. We are more than our diagnoses; we are people seeking a sustainable way to live well.

Increasing Awareness

Partnering with colleagues and stakeholders to recognize the multisystemic nature of connective tissue disorders.

I am dedicated to:

Hypermobile Ehlers Danlos Syndrom (hEDS)

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zebra

What is hEDS exactly?

Here you can read more about hEDS. For my personal experience and tips, scroll below.

Diagnostic criteria

I find the current diagnostic criteria limited and feel they don't take into account the multisystemic aspects of hEDS. You can use it as a starting point to see for yourself if you meet the criteria.

Disability

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a man riding a skateboard down the side of a ramp

a man riding a skateboard down the side of a ramp

Visible

Invisible

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Pain

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a man riding a skateboard down the side of a ramp

a man riding a skateboard down the side of a ramp

Acute

Chronic

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Anxiety

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a man riding a skateboard down the side of a ramp

a man riding a skateboard down the side of a ramp

Acute

Chronic

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Acceptance & Pacing

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a man riding a skateboard down the side of a ramp

a man riding a skateboard down the side of a ramp

Learning and honouring my limits

Learning to ask for help, priorities, surrender

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Identity, self worth, also when others don't value you

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a man riding a skateboard down the side of a ramp

a man riding a skateboard down the side of a ramp

Medical doctor - support

Learning to ask for help, priorities, surrender

Feel free to include your background, experiences, and any unique aspects that set your business apart. Highlight your mission, values, and the benefits your customers can expect.

Get more support

Personalized care and expert guidance for complex health challenges

For professionals

Collaborate here

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girl in blue jacket holding red and silver ring

For affected individuals

Join my online community for inspiration, updates and support

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Three smiling friends with arms around each other

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Resources and spirituality